Field Name |
Format |
Description |
CHILD_ID | Character or Numeric | *Required Patient ID of the child or Dummy ID If child is not enrolled into care at an IeDEA site, enter mother's ID with dashed numeric suffix such as [MOTHER_ID]-1, [MOTHER_ID]-2, etc. here. |
ABNORM1 | Character See Code ListABNORM1 Code | Definition | 1.1 | Hydrocephalus | 1.2 | Microcephaly | 1.3 | Neural tube defects | 1.4 | Central Nervous System (CNS) - Other | 2.1 | Cleft lip and palate | 2.2 | Eye, Ear, Face and Neck - Other | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | 3.3 | Heart - Other | 4.1 | Gastroschisis | 4.2 | Intestinal atresia | 4.3 | Tracheo-esophageal Fistula | 4.4 | Omphalocele | 4.5 | Anorectal malformation | 4.6 | Gastro-intestinal system - Other | 5.1 | Ambiguous genitalia | 5.2 | Hypospadias | 5.3 | Genitals - Other | 6.1 | Posterior urethral valves | 6.2 | Renal and urinary system - Other | 7.1 | Talipes equinovarus (club foot) | 7.2 | Limb defects - Other | 8.1 | Down syndrome | 8.2 | Chromosomal anomaly - Other | 9.1 | Other Organ System(s) Abnormality |
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ABNORM2 | Character See Code ListABNORM2 Code | Definition | 1.1 | Hydrocephalus | 1.2 | Microcephaly | 1.3 | Neural tube defects | 1.4 | Central Nervous System (CNS) - Other | 2.1 | Cleft lip and palate | 2.2 | Eye, Ear, Face and Neck - Other | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | 3.3 | Heart - Other | 4.1 | Gastroschisis | 4.2 | Intestinal atresia | 4.3 | Tracheo-esophageal Fistula | 4.4 | Omphalocele | 4.5 | Anorectal malformation | 4.6 | Gastro-intestinal system - Other | 5.1 | Ambiguous genitalia | 5.2 | Hypospadias | 5.3 | Genitals - Other | 6.1 | Posterior urethral valves | 6.2 | Renal and urinary system - Other | 7.1 | Talipes equinovarus (club foot) | 7.2 | Limb defects - Other | 8.1 | Down syndrome | 8.2 | Chromosomal anomaly - Other | 9.1 | Other Organ System(s) Abnormality |
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ABNORM3 | Character See Code ListABNORM3 Code | Definition | 1.1 | Hydrocephalus | 1.2 | Microcephaly | 1.3 | Neural tube defects | 1.4 | Central Nervous System (CNS) - Other | 2.1 | Cleft lip and palate | 2.2 | Eye, Ear, Face and Neck - Other | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | 3.3 | Heart - Other | 4.1 | Gastroschisis | 4.2 | Intestinal atresia | 4.3 | Tracheo-esophageal Fistula | 4.4 | Omphalocele | 4.5 | Anorectal malformation | 4.6 | Gastro-intestinal system - Other | 5.1 | Ambiguous genitalia | 5.2 | Hypospadias | 5.3 | Genitals - Other | 6.1 | Posterior urethral valves | 6.2 | Renal and urinary system - Other | 7.1 | Talipes equinovarus (club foot) | 7.2 | Limb defects - Other | 8.1 | Down syndrome | 8.2 | Chromosomal anomaly - Other | 9.1 | Other Organ System(s) Abnormality |
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ABNORM4 | Character See Code ListABNORM4 Code | Definition | 1.1 | Hydrocephalus | 1.2 | Microcephaly | 1.3 | Neural tube defects | 1.4 | Central Nervous System (CNS) - Other | 2.1 | Cleft lip and palate | 2.2 | Eye, Ear, Face and Neck - Other | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | 3.3 | Heart - Other | 4.1 | Gastroschisis | 4.2 | Intestinal atresia | 4.3 | Tracheo-esophageal Fistula | 4.4 | Omphalocele | 4.5 | Anorectal malformation | 4.6 | Gastro-intestinal system - Other | 5.1 | Ambiguous genitalia | 5.2 | Hypospadias | 5.3 | Genitals - Other | 6.1 | Posterior urethral valves | 6.2 | Renal and urinary system - Other | 7.1 | Talipes equinovarus (club foot) | 7.2 | Limb defects - Other | 8.1 | Down syndrome | 8.2 | Chromosomal anomaly - Other | 9.1 | Other Organ System(s) Abnormality |
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ABNORM5 | Character See Code ListABNORM5 Code | Definition | 1.1 | Hydrocephalus | 1.2 | Microcephaly | 1.3 | Neural tube defects | 1.4 | Central Nervous System (CNS) - Other | 2.1 | Cleft lip and palate | 2.2 | Eye, Ear, Face and Neck - Other | 3.1 | Acyanotic defects (e.g., ASD, VSD, AV canal, PDA) | 3.2 | Cyanotic defects (e.g. Tetralogy of Fallot, transposition, pulmonary atresia, truncus, Ebstein's) | 3.3 | Heart - Other | 4.1 | Gastroschisis | 4.2 | Intestinal atresia | 4.3 | Tracheo-esophageal Fistula | 4.4 | Omphalocele | 4.5 | Anorectal malformation | 4.6 | Gastro-intestinal system - Other | 5.1 | Ambiguous genitalia | 5.2 | Hypospadias | 5.3 | Genitals - Other | 6.1 | Posterior urethral valves | 6.2 | Renal and urinary system - Other | 7.1 | Talipes equinovarus (club foot) | 7.2 | Limb defects - Other | 8.1 | Down syndrome | 8.2 | Chromosomal anomaly - Other | 9.1 | Other Organ System(s) Abnormality |
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ABNORM_S | Character | Further specification of abnormality |